End of Life

Practical steps to do before, during and after. Including how to do end of life planning, writing a will and arranging funerals.

πŸ’¬ WhatsApp Chat for End of Life section πŸ’¬


Link Drop

Got another link for this section? Put it here.
πŸ”— wwww.mylivingwill.org.uk
βœ‰οΈ [email protected]
This website provides advice on advance planning of care towards the end of life and includes new options for COVID-19

Helix Centre: End-of-life Care Toolkits for Carers at Home
πŸ”—https://helixcentre.com/project-end-of-life-toolkit

πŸ”— https://wiki.techinc.nl/Hackers_tribes#Accepting_Death -> many many links & resources!

Article on the question of whether to refuse ICU admission:
πŸ”— https://www.wired.com/story/stewart-brand-ventilator-end-of-life-care/
Example directive refusing ventilation or ICU admission in case of COVID-19 infection: πŸ”—https://twitter.com/stewartbrand/status/1249054846033883142

πŸ”—https://guardianangel.network/

πŸ”—https://vivorecuerdo.es/

πŸ”—https://urnabios.com/

πŸ”—https://www.theguardian.com/world/2020/may/14/why-should-you-cry-ghanas-dancing-pallbearers-find-new-fame-during-covid-19

πŸ”—https://www.theguardian.com/world/2020/may/14/my-rabbis-tools-now-include-a-phone-uk-jewish-burials-changed-by-covid-19

✏️ Edit this document to make it better ✏️

Ars Moriendi (The Art of Dying)

Being Moral by Atul Gawande. Chapter 6- Letting go
Principals:

  • Avoid Suffering
  • Strengthen relationships with family and friends
  • Be Mentally aware
  • Not be a burden on others
  • Achieve a sense that their life is complete


Ars Moriendi

πŸ”—https://digital.bodleian.ox.ac.uk/inquire/Discover/Search/#/?p=c+6,t+ars%20moriendi,rsrs+0,rsps+100,fa+,so+ox%3Asort%5Easc,scids+,pid+,vi+
Digitised version of the original book

Art of living and dying well

πŸ”—https://www.theguardian.com/commentisfree/2019/jun/04/lets-talk-about-the-art-of-living-and-dying-well
Let's talk about the art of living and dying well by Ranjana Srivastava.

Thinking about Death

πŸ“ΊπŸ”—https://www.youtube.com/watch?v=oNu6NyMkp8k&feature=youtu.be&t=590
What happens when we die?

How to use the thought of death
πŸ“ΊπŸ”—https://www.youtube.com/watch?v=yg6i7nppkAw
The thought of death doesn't have to be pessimistic or unnecessarily morbid: it might be what we need to return focus and appreciation to life. By the School of Life.

Reasons to Remember Death

πŸ“ΊπŸ”—https://www.youtube.com/watch?v=-A7VrTxuZIE
It isn’t macabre or nihilistic to think of death. It’s the start of a proper, braver engagement with the possibilities of life. By the School of Life.

How to face death personally

πŸ”—https://www.artofdyingwell.org/facing-death-personally/
Living with the knowledge that death is close at hand can take a huge emotional toll. How can we cope.

Thinking of what is important

πŸ”—https://caspertk.wordpress.com/2015/04/29/knowing-we-must-die-how-then-shall-we-live-2/
Knowing we must die

Tools

We Croak

πŸ”—https://www.wecroak.com/
An app to remind you of your mortality

Talking about Death

Before Death

πŸ”—https://www.artofdyingwell.org/talking-about-death/
Why is it so hard to talk about death? And, why is it so important that we should?

πŸ”—https://www.theschoolofdeath.com/library/
A collection of thought provoking literature

πŸ”—https://www.bbc.co.uk/news/uk-wales-52070212
Coronavirus: Doctors urge 'difficult conversations' about death

πŸ”—https://edition.cnn.com/2020/03/31/health/family-death-planning-coronavirus-khn-wellness/index.html
Talking to your family about death and medical directives, amid Coronavirus

πŸ”—https://www.euronews.com/2020/03/16/tough-conversations-end-of-life-care-can-no-longer-be-avoided-as-coronavirus-spreads-view
Tough conversations about end of life care can no longer be avoided as Coronavirus spreads

πŸ”—https://reimagininghealth.com/a-difficult-conversation-about-covid-19-care-planning/
A Difficult Conversation About COVID-19 – Care Planning

Following a Death

πŸ”—https://www.winstonswish.org/telling-a-child-someone-died-from-coronavirus/
How to tell a child that someone has died from the Coronavirus

πŸ”—https://www.dictionaryofobscuresorrows.com/
The language of sorrow

Prepare for Death

πŸ”—https://docs.google.com/document/d/1GwdJIE1ketgMtGE04N-WQO_nQQmTKtPgpOTv9cFdZ6w/edit
Prepare for end of Life

πŸ”—https://getyourshittogether.org/checklist/
Life and death planning checklist (a little dark...but maybe useful for some?

πŸ‡¬πŸ‡§πŸ”—https://www.dyingmatters.org/
Dying Matters

πŸ‡ΊπŸ‡ΈπŸ”—https://lifehacker.com/one-day-youre-going-to-die-heres-how-to-prepare-for-i-5992722
One day, you are going to die. Here is how to prepare for it.

πŸ”— https://www.oktodie.com/preparation-checklists
Death preparation checklist

Organising Your Data

Red Folder

πŸ”—https://www.burgessct.com/2020/04/02/red-folder/#.XokBylNKjOQ
The original Red Folder was kept in a bookcase in our home. When I was deployed abroad, during my CIA years, I would leave in that folder all the information I thought my wife might need during my absence. The nature of my work did not allow me to always have direct contact with my family, and thus, I wasn’t always available to answer the questions.
It also ensured that my wife had at her fingertips, all the information she needed in the unlikely event I did not return.

EverPlan

πŸ”—https://www.everplans.com/important-documents
Important document and how to organise them

Digital Legacy

πŸ‡ΊπŸ‡ΈπŸ”—https://www.everplans.com/articles/who-controls-your-digital-legacy-when-you-die
Who controls your digital legacy when you die?

πŸ”—https://www.rd.com/advice/relationships/death-on-social-media/
Etiquette rules for dealing with death on social media

Life Insurance

πŸ‡ΊπŸ‡ΈπŸ”—https://www.everplans.com/life-insurance
Collection of guides on life insurance

Your Pension


Prepare End of Life Documentations

  • Last Will and Testament: Distribution of property & possessions after deathΒ 
  • Lasting Power of Attorney (LPA): Personal welfare (medical) VS property & financial affairs
  • Living Will/Advance Directive/Advance Decision to Refuse Treatment: Medical wishes
  • Advance Care Planning and Advanced Statements: Care preferences (location, people and treatment decisions)
  • DNAR/DNACPR Forms/Order and CPR Decisions: Refuse CPR only

Last Will and Testament

Distribution of property & possessions after deathΒ 

Guides

National Records of Scotland

πŸ΄σ §σ ’σ ³σ £σ ΄σ ΏπŸ”—https://www.nrscotland.gov.uk/research/guides/wills-and-testaments
Wills guidance

Making a will

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/make-will
Includes guides on writing your will, ensuring legality and updating.

Beyond

πŸ‡¬πŸ‡§πŸ”—https://beyond.life/help-centre/admin-legal/someone-dies-without-will/
What happens if someone dies without a will?

Tools

Farewill

πŸ‡¬πŸ‡§πŸ”—https://farewill.com/
πŸ‡¬πŸ‡§πŸ”—https://farewill.com/nhs
Farewill are offering a free will to all NHS workers

FreeWills

πŸ‡¬πŸ‡§πŸ”—https://freewills.co.uk
Their mission is to provide an easy way for every British adult to make a personalised will, for free.

πŸ‡¬πŸ‡§πŸ”—https://www.moneysavingexpert.com/family/free-cheap-wills/
Cheap and free wills

Beyond

πŸ‡¬πŸ‡§πŸ”—https://beyond.life/make-will-online
Beyond online wills

Legalzoom

πŸ‡¬πŸ‡§πŸ”—https://www.legalzoom.com/uk/wills/
Protect your family with a rock-solid will.

MyWIshes

πŸ‡¬πŸ‡§πŸ”—https://www.mywishes.co.uk/how-it-worksΒ 
Free end of life planning software that provides advance care planning (advance directives / anticipatory care planning), funeral planning, digital legacy and assets planning

Total Legal

πŸ‡ΊπŸ‡ΈπŸ”—https://www.totallegal.com/last-will-and-testament
Last will and Testament

Lasting Power of Attorney (LPA)

Personal welfare (medical) VS property & financial affairs

πŸ‡¬πŸ‡§πŸ”—https://www.lastingpowerofattorney.service.gov.uk/homeΒ 
Lasting Power of Attorney Service Status

Tools

Total Legal

πŸ‡ΊπŸ‡ΈπŸ”—https://www.totallegal.com/power-of-attorney
Power of Attorney

Legalzoom

πŸ‡¬πŸ‡§πŸ”—https://cms.legalzoom.co.uk/uk/power-of-attorney/

If you ever lose your capacity to make decisions, you’ll need someone you trust to do it for you. Make it easier for that person by choosing them now, with a Lasting Power of Attorney (LPA), our team of highly skilled legal professionals can help you do this.

Living Will/Advance Directive/Advance Decision to Refuse Treatment

Medical wishes

MyWIshes

πŸ‡¬πŸ‡§πŸ”—https://www.mywishes.co.uk/how-it-worksΒ 
Free end of life planning software that provides advance care planning (advance directives / anticipatory care planning), funeral planning, digital legacy and assets planning

Total Legal

πŸ‡ΊπŸ‡ΈπŸ”—https://www.totallegal.com/living-will
AΒ Living WillΒ (also known as aΒ Health Care Directive) specifies whether you would like to be kept on artificial life support if you become permanently unconscious or are otherwise dying and unable to speak for yourself.

Advance Care Planning

Care preferences (location, people and treatment decisions)

MyWIshes

πŸ‡¬πŸ‡§πŸ”—https://www.mywishes.co.uk/how-it-worksΒ 
Free end of life planning software that provides advance care planning (advance directives / anticipatory care planning), funeral planning, digital legacy and assets planning

Respecting Choices

πŸ‡ΊπŸ‡ΈπŸ”—https://respectingchoices.org/
An internationally recognized, evidence-based model of advance care planning (ACP) that creates a healthcare culture of person-centered careβ€”care that honors an individual’s goals and values for current and future healthcare.

Vital Decisions

πŸ‡ΊπŸ‡ΈπŸ”—https://vitaldecisions.net/
Advanced Care alignment

NHPCO

πŸ‡ΊπŸ‡ΈπŸ”—https://www.nhpco.org/patients-and-caregivers/advance-care-planning/
Advance care planning

Five Wishes

πŸ‡ΊπŸ‡ΈπŸ”—
https://fivewishes.org/five-wishes
Advance care planning

DNAR/DNACPR Forms/Order and CPR Decisions

Refuse CPR only

MyWIshes

πŸ‡¬πŸ‡§πŸ”—https://www.mywishes.co.uk/how-it-worksΒ 
Free end of life planning software that provides advance care planning (advance directives / anticipatory care planning), funeral planning, digital legacy and assets planning

Funeral Arrangements

MyWIshes

πŸ‡¬πŸ‡§πŸ”—https://www.mywishes.co.uk/how-it-worksΒ 
Free end of life planning software that provides advance care planning (advance directives / anticipatory care planning), funeral planning, digital legacy and assets planning

Beyond

πŸ‡¬πŸ‡§πŸ”—https://beyond.life/
πŸ‡¬πŸ‡§πŸ”—https://beyond.life/compare-funeral-plans
Arrange a funeral

Funerals during the Outbreak

πŸ‡ΊπŸ‡ΈπŸ”—https://good-grief.org/wordpress/wp-content/themes/x-child/pdf/Children-Funerals-and-a-Pandemic.pdf
Funeral in a time of pandemic. A toolkit for families and children

πŸ‡ΊπŸ‡ΈπŸ”—https://www.bbc.com/news/world-us-canada-51935266Β 
News article - US funerals move to live-streaming

πŸ‡¬πŸ‡§πŸ”—https://www.bbc.co.uk/news/uk-52142660
How to grieve a loved one when you can't say goodbye

πŸ‡¬πŸ‡§πŸ”—https://www.cruse.org.uk/coronavirus/funerals
Coronavirus: funerals and memorials

πŸ‡¬πŸ‡§πŸ”—https://nafd.org.uk/funeral-advice/
Questions about funerals during COVID-19

πŸ‡¬πŸ‡§πŸ”—https://quakersocialaction.org.uk/we-can-help/helping-funerals/down-earth/coronavirus-information-regarding-funerals
Coronavirus information regarding funerals

πŸ‡¬πŸ‡§πŸ”—http://www.nelsonsjourney.org.uk/covid-19-funeralguidance/
Coronavirus: Guidance for Families around Funerals

Stories

πŸ”—https://www.cpr.org/2020/04/01/denver-coronavirus-death-family-mike-farley-maybe-to-goodbye/
How A Denver Family Found Itself Saying Goodbye To COVID-19-Infected Father Over Video Chat

Final Weeks

Plans for the final weeks

πŸ”—https://docs.google.com/document/d/1JPSxuwWecG-P9KejYwOTI4N-y4CSoL60CG1kJGH8gXw/edit?usp=sharing
Final weeks / saying farewell (for you or a loved one)

After Someone Dies

Immediately After

UK Gov Guide

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/after-a-death
What to do when someone dies

Immediate Action

πŸ”—https://docs.google.com/document/d/1v4J_YdnSNNXPqdHWSlt48RpqzeH_RvlACLrgXFst1vc/edit?usp=sharing
When someone dies & immediately after

If with Suspected or Confirmed Coronavirus

UK Gov guidance for a patient who has died

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/government/publications/covid-19-guidance-for-care-of-the-deceased/guidance-for-care-of-the-deceased-with-suspected-or-confirmed-coronavirus-covid-19
Advice primarily designed to assist people who are required to manage the bodies of deceased persons infected with Coronavirus (COVID-19).

A Few Weeks After Someone Dies

A few weeks later

πŸ”—https://docs.google.com/document/d/1PwOhchFxblgXDSw3H9EIk5x41VJgr6AuMJ5Zm1q1zo8/edit?usp=sharing

Capital Gain Tax

UK Gov Guide

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/capital-gains-tax
Capital Gains Tax is a tax on the profit when you sell (or β€˜dispose of’) something (an β€˜asset’) that’s increased in value.

Inheritance Tax

UK Gov Guide

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/inheritance-tax
Inheritance Tax is a tax on the estate (the property, money and possessions) of someone who’s died.

Applying for Probate

Legal right to deal with someone's property when they die

UK Gov Guide

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/applying-for-probate
Applying for the legal right to deal with someone’s property, money and possessions (their β€˜estate’) when they die is called β€˜applying for probate’.

Bereavement Support

See also: https://coronavirustechhandbook.com/bereavement

Religious Considerations

Christianity

Catholic

πŸ”—https://youtu.be/P9UMbhvcLdI
The Sacrament of the Anointing of the Sick

Islam

NHS Guide
πŸ”—https://www.pat.nhs.uk/downloads/patient-information-leaflets/bereavement/Bereavement%20End%20of%20life%20care%20for%20muslims.pdf
End of life care for Muslim

πŸ”—https://www.crossroadshospice.com/hospice-palliative-care-blog/2015/october/13/the-culture-connection-muslim-end-of-life-practices/
End of life practices for Muslims

πŸ”—http://hospicefoundation.ie/wp-content/uploads/2013/04/Caring-for-A-Muslim-Patient.pdf
Caring for a muslim patient

Judaism

πŸ”—https://www.myjewishlearning.com/article/end-of-life-issues-a-jewish-perspective/
End of life perspective: a Jewish view

πŸ”—https://www.crossroadshospice.com/hospice-palliative-care-blog/2015/august/10/the-culture-connection-judaism-at-end-of-life/
End of life practices for a Jewish person

No Religion- Atheism

Facing Death without Religion

πŸ”—https://bulletin.hds.harvard.edu/facing-death-without-religion/
Secular sources like science work well for meaning making

Inspiration