End of Life


Practical steps to do before, during and after. Including how to do end of life planning, writing a will and arranging funerals.


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Death, In General

Dealing with Death

πŸŒπŸ”—Β https://wiki.techinc.nl/Hackers_tribes#Accepting_Death

Many links & resources

Ars Moriendi

πŸŒπŸ”—https://digital.bodleian.ox.ac.uk/inquire/Discover/Search/#/?p=c+6,t+ars%20moriendi,rsrs+0,rsps+100,fa+,so+ox%3Asort%5Easc,scids+,pid+,vi+

Digitised version of the original book

Making Decisions About End of Life Care

πŸ“– Being mortal: Medicine and what matters in the end

Gawande, A. (2017). Being mortal: Medicine and what matters in the end. Toronto, Ontario: Anchor Canada. Book examines different ways for preparing for end of life care and offers advice

Stewart Brand Is 81β€”and He Doesn’t Want to Go on a Ventilator

πŸŒπŸ”—Β https://www.wired.com/story/stewart-brand-ventilator-end-of-life-care/

Discussion of end of life care decisions

Stewart Brand's Twitter Thread Featuring His Advance Medical Directive

πŸŒπŸ”—https://twitter.com/stewartbrand/status/1249054846033883142

Example of an advance care directive refusing ventilation or ICU admission in case of COVID-19 infection

Art of living and dying well

πŸŒπŸ”—https://www.theguardian.com/commentisfree/2019/jun/04/lets-talk-about-the-art-of-living-and-dying-well

Oncologist Ranjana Srivastava discusses her experiences with people dying of terminal illnesses

End of Life Issues: A Jewish Perspective

πŸŒπŸ”—https://www.myjewishlearning.com/article/end-of-life-issues-a-jewish-perspective/

An introduction to Jewish attitudes toward life support, ceasing medical care, living wills, and caring for patients in their final days

Facing Death without Religion

πŸŒπŸ”—https://bulletin.hds.harvard.edu/facing-death-without-religion/

Study of elderly agnostic and atheistic people looking at how they prepare for death

For Caregivers

Helix Centre: End-of-life Care Toolkits for Carers at Home

πŸŒπŸ”—https://helixcentre.com/project-end-of-life-toolkit

Toolkits for caring for people who are dying

Caring for a Muslim patient

πŸŒπŸ”—http://hospicefoundation.ie/wp-content/uploads/2013/04/Caring-for-A-Muslim-Patient.pdf

Advice for hospice and hospital staff caring for Muslim patients

The Culture Connection: Muslim End-of-Life Practices

πŸŒπŸ”—https://www.crossroadshospice.com/hospice-palliative-care-blog/2015/october/13/the-culture-connection-muslim-end-of-life-practices/

Advice for chaplains on end of life practices for Muslims

The Culture Connection: Judaism at End-of-Life

πŸŒπŸ”—https://www.crossroadshospice.com/hospice-palliative-care-blog/2015/august/10/the-culture-connection-judaism-at-end-of-life/

Advice for chaplains caring for Jewish people at the end of life

The Sacrament of the Anointing of the Sick

πŸŒπŸ”—https://youtu.be/P9UMbhvcLdI

A video for Catholics reminding you how the Church can help in times of sickness and death

Thinking about Death

How to use the thought of death - School of Life

πŸ“ΊπŸ”—https://www.youtube.com/watch?v=yg6i7nppkAw

The thought of death doesn't have to be pessimistic or unnecessarily morbid: it might be what we need to return focus and appreciation to life

Reasons to Remember Death - School of Life

πŸ“ΊπŸ”—https://www.youtube.com/watch?v=-A7VrTxuZIE

It isn’t macabre or nihilistic to think of death. It’s the start of a proper, braver engagement with the possibilities of life

How to face death personally

πŸŒπŸ”—https://www.artofdyingwell.org/facing-death-personally/

Living with the knowledge that death is close at hand can take a huge emotional toll - site offers advice on end of life care from multiple points of view

Knowing we must die, How Then Shall We Live?

πŸŒπŸ”—https://caspertk.wordpress.com/2015/04/29/knowing-we-must-die-how-then-shall-we-live-2/

Minister for non-religious people discusses lessons learned from ministering to the dying

Talking about Death

Before Death

Talking About Death

πŸŒπŸ”—https://www.artofdyingwell.org/talking-about-death/

Why is it so hard to talk about death? How to discuss death

The School of Death

πŸŒπŸ”—https://www.theschoolofdeath.com/library/

A collection of thought provoking literature

Coronavirus: Doctors urge 'difficult conversations' about death

πŸŒπŸ”—https://www.bbc.co.uk/news/uk-wales-52070212

People should talk to loved ones about their wishes if they were to become critically ill with coronaviru

Talking to your family about death and medical directives, amid Coronavirus

πŸŒπŸ”—https://edition.cnn.com/2020/03/31/health/family-death-planning-coronavirus-khn-wellness/index.html

How do you want to be cared for in the hospital

Tough conversations about end of life care can no longer be avoided as Coronavirus spreads

πŸŒπŸ”—https://www.euronews.com/2020/03/16/tough-conversations-end-of-life-care-can-no-longer-be-avoided-as-coronavirus-spreads-view

The title says it all

A Difficult Conversation About COVID-19 – Care Planning

πŸŒπŸ”—https://reimagininghealth.com/a-difficult-conversation-about-covid-19-care-planning/

Following a Death

How to tell a child that someone has died from the Coronavirus

πŸŒπŸ”—https://www.winstonswish.org/telling-a-child-someone-died-from-coronavirus/

Advice for talking to children about death

The language of sorrow

πŸŒπŸ”—https://www.dictionaryofobscuresorrows.com/

Terms for different types of sorrows

Guardian Angel

πŸ‡¬πŸ‡§πŸ”—https://guardianangel.network/

Fee-based consulting bereavement and will creation. Obviously this is not the only group offering these services

Prepare for Death

Prepare for End of Life

πŸŒπŸ”—https://docs.google.com/document/d/1GwdJIE1ketgMtGE04N-WQO_nQQmTKtPgpOTv9cFdZ6w/edit

Google doc with list of things you need to do to prepare for death

Life and death planning checklist

πŸŒπŸ”—https://getyourshittogether.org/checklist/

Life and death planning checklist (a little dark...but maybe useful for some)

Dying Matters

πŸ‡¬πŸ‡§πŸ”—https://www.dyingmatters.org/

Raising awareness of dying, death and bereavement

One day, you are going to die, Here is how to prepare for it

πŸ‡ΊπŸ‡ΈπŸ”—https://lifehacker.com/one-day-youre-going-to-die-heres-how-to-prepare-for-i-5992722

Guides you through the things to do to prepare for end of life

Death preparation checklist

πŸŒπŸ”—Β https://www.oktodie.com/preparation-checklists

Various checklists for preparing for end of life

Organising Your Data

Red Folder

πŸŒπŸ”—https://www.burgessct.com/2020/04/02/red-folder/#.XokBylNKjOQ

Former CIA agent shares his method for ensuring that his partner would have access to all of his important documents in case of emergency or unforeseen death

EverPlan

πŸŒπŸ”—https://www.everplans.com/important-documents

Important documents and how to organise them

Digital Legacy

Who controls your digital legacy when you die?

πŸ‡ΊπŸ‡ΈπŸ”—https://www.everplans.com/articles/who-controls-your-digital-legacy-when-you-die

Access to digital accounts does not automatically pass on to anyone after you die and cannot be part of your will

11 Etiquette Rules You Need for Dealing with Death on Social Media

πŸŒπŸ”—https://www.rd.com/advice/relationships/death-on-social-media/

Etiquette rules for dealing with death on social media

Life Insurance

Life Insurance

πŸ‡ΊπŸ‡ΈπŸ”—https://www.everplans.com/life-insurance

Collection of guides on life insurance

Last Will and Testament

Distribution of property & possessions after death

National Records of Scotland

πŸ΄σ §σ ’σ ³σ £σ ΄σ ΏπŸ”—https://www.nrscotland.gov.uk/research/guides/wills-and-testaments

Wills guidance

Making a will

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/make-will

Includes guides on writing your will, ensuring legality and updating.

My Living Will

πŸ‡¬πŸ‡§πŸ”—Β www.mylivingwill.org.uk

This UK-focused website provides advice on advance planning of care towards the end of life and includes new options for COVID-19

Beyond

πŸ‡¬πŸ‡§πŸ”—https://beyond.life/help-centre/admin-legal/someone-dies-without-will/

What happens if someone dies without a will?

Farewill

πŸ‡¬πŸ‡§πŸ”—https://farewill.com/nhs

Farewill are offering a free will to all NHS workers

FreeWills

πŸ‡¬πŸ‡§πŸ”—https://freewills.co.uk

Their mission is to provide an easy way for every British adult to make a personalised will, for free

Cheap and Free Wills

πŸ‡¬πŸ‡§πŸ”—https://www.moneysavingexpert.com/family/free-cheap-wills/

Cheap and free wills

Beyond

πŸ‡¬πŸ‡§πŸ”—https://beyond.life/make-will-online

Beyond online wills

Legalzoom

πŸ‡¬πŸ‡§πŸ”—https://www.legalzoom.com/uk/wills/

Protect your family with a will

MyWishes

πŸ‡¬πŸ‡§πŸ”—https://www.mywishes.co.uk/how-it-worksΒ 

Free end of life planning software that provides advance care planning (advance directives / anticipatory care planning), funeral planning, digital legacy and assets planning

Total Legal

πŸ‡ΊπŸ‡ΈπŸ”—https://www.totallegal.com/last-will-and-testament

Last will and Testament

Lasting Power of Attorney (LPA)

Lasting Power of Attorney Service Status

πŸ‡¬πŸ‡§πŸ”—https://www.lastingpowerofattorney.service.gov.uk/homeΒ 

Guides you through the process of creating lasting power of attorney

Total Legal

πŸ‡ΊπŸ‡ΈπŸ”—https://www.totallegal.com/power-of-attorney

Power of Attorney

Legalzoom

πŸ‡¬πŸ‡§πŸ”—https://cms.legalzoom.co.uk/uk/power-of-attorney/

If you ever lose your capacity to make decisions, you’ll need someone you trust to do it for you. Make it easier for that person by choosing them now, with a Lasting Power of Attorney (LPA), our team of highly skilled legal professionals can help you do this

Living Will/Advance Directive/Advance Decision to Refuse Treatment

MyWishes

πŸ‡¬πŸ‡§πŸ”—https://www.mywishes.co.uk/how-it-worksΒ 

Free end of life planning software that provides advance care planning (advance directives / anticipatory care planning), funeral planning, digital legacy and assets planning

Total Legal

πŸ‡ΊπŸ‡ΈπŸ”—https://www.totallegal.com/living-will

A Living WillΒ (also known as a Health Care Directive) specifies whether you would like to be kept on artificial life support if you become permanently unconscious or are otherwise dying and unable to speak for yourself.

Advance Care Planning

MyWishes

πŸ‡¬πŸ‡§πŸ”—https://www.mywishes.co.uk/how-it-worksΒ 

Free end of life planning software that provides advance care planning (advance directives / anticipatory care planning), funeral planning, digital legacy and assets planning

Respecting Choices

πŸ‡ΊπŸ‡ΈπŸ”—https://respectingchoices.org/

An internationally recognized, evidence-based model of advance care planning (ACP) that creates a healthcare culture of person-centered careβ€”care that honors an individual’s goals and values for current and future healthcare.

Vital Decisions

πŸ‡ΊπŸ‡ΈπŸ”—https://vitaldecisions.net/

Advanced Care alignment

NHPCO

πŸ‡ΊπŸ‡ΈπŸ”—https://www.nhpco.org/patients-and-caregivers/advance-care-planning/

Advance care planning

Five Wishes

πŸ‡ΊπŸ‡ΈπŸ”—https://fivewishes.org/five-wishes

Advance care planning

DNAR/DNACPR Forms/Order and CPR Decisions

MyWishes

πŸ‡¬πŸ‡§πŸ”—https://www.mywishes.co.uk/how-it-worksΒ 

Free end of life planning software that helps you express how you wish to refuse CPR

Final Weeks

Plans for the final weeks

πŸ”—https://docs.google.com/document/d/1JPSxuwWecG-P9KejYwOTI4N-y4CSoL60CG1kJGH8gXw/edit?usp=sharing

Final weeks / saying farewell (for you or a loved one)

After Someone Dies

If with Suspected or Confirmed Coronavirus

UK Gov guidance for a patient who has died

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/government/publications/covid-19-guidance-for-care-of-the-deceased/guidance-for-care-of-the-deceased-with-suspected-or-confirmed-coronavirus-covid-19

Advice primarily designed to assist people who are required to manage the bodies of deceased persons infected with Coronavirus (COVID-19).

Immediately After

UK Gov Guide

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/after-a-death

What to do when someone dies

Immediate Action

πŸŒπŸ”—https://docs.google.com/document/d/1v4J_YdnSNNXPqdHWSlt48RpqzeH_RvlACLrgXFst1vc/edit?usp=sharing

When someone dies & immediately after

A Few Weeks After Someone Dies

A few weeks later

πŸŒπŸ”—https://docs.google.com/document/d/1PwOhchFxblgXDSw3H9EIk5x41VJgr6AuMJ5Zm1q1zo8/edit?usp=sharing

Capital Gain Tax

UK Gov Guide

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/capital-gains-tax

Capital Gains Tax is a tax on the profit when you sell (or β€˜dispose of’) something (an β€˜asset’) that’s increased in value.

Inheritance Tax

UK Gov Guide

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/inheritance-tax

Inheritance Tax is a tax on the estate (the property, money and possessions) of someone who’s died.

Applying for Probate - the legal right to deal with someone's property when they die

UK Gov Guide

πŸ‡¬πŸ‡§πŸ”—https://www.gov.uk/applying-for-probate

Applying for the legal right to deal with someone’s property, money and possessions (their β€˜estate’) when they die is called β€˜applying for probate’.